Logo of Kapi`olani Medical Center for Women & Children; An affiliate of Hawaii Pacific Health
Volume 4.Issue 2.Nov. 2006

Kapi`olani Kids; The Latest in Children's Health From Kapi`olani Children's Hospital

It Becomes an Honor to Know
Kids With Cancer

The efforts of many are an essential part of treatment at Kapi‘olani.

Image of a beadThey are hard-won, these brightly colored beads, each recalling a memory that will not be cast away by the children who own them. Blue beads stand for a clinic visit, light green ones mark a test or scan, silver and black ones the poke of a needle, white ones a chemo day, red ones a transfusion, and the “big hair” bead is for thinning or loss of hair.

They come in a profusion of colors and shapes to match a litany of medical interventions, and are put together on a string. It is not uncommon for each strand to be made up of hundreds of beads, sometimes thousands of them — with every bead marking a step in the child’s treatment for cancer.

Image of a beadThey are known as Beads of Courage, part of a national program that Kapi‘olani Medical Center for Women & Children adopted for its young cancer patients on May Day this past year. One little girl has tied her strands together into a link that is now more than 27 feet long.

Beads of courage and affirmation

“Kandis Teho, the mother of one of our children, knew about the program on the Mainland and was the catalyst to bringing Beads of Courage to Kapi‘olani,” says Pam Carey-Goo, R.N., pediatric clinical coordinator at Kapi‘olani. “We have about 50 children, and this is something that is valued by kids of all ages, whether they are toddlers or teenagers.”

Kapi‘olani, a member of the National Cancer Institute’s Children’s Oncology Group, participates in many support programs for its young cancer patients. With Beads of Courage, the underlying idea is that giving children a way to acknowledge their treatment can potentially improve the outcome by helping them become more resilient to their cancer. Resiliency can decrease distress, depression and anxiety. It can increase a child’s ability to cope and stay engaged.

“There are some teens who make artwork out of their strands,” says Carey- Goo. “They have put them on wires to make sculptures. They have glued them on basketballs. Some kids will take their Beads of Courage to school for show-andtell. It’s more than saying, ‘I have cancer.’ It’s saying, ‘I have these 200, or 700, or thousands of beads. This means I have had this much chemo, that much radiation, this many blood tests, this many transfusions, tube insertions, days in the hospital or surgeries.’

“The beads are an affirmation of what they are going through. It shows their courage. It is also a way of opening up a conversation, whether it’s with their friends, nurses or doctors. The result is that the beads become a tangible symbol of their strength and courage to overcome hurdles in their young lives.”

Recognition as a Children’s Oncology Group member requires Kapi‘olani to adhere to strict standards of the National Cancer Institute (NCI). According to the NCI, providing coordinated treatment as a comprehensive, multidisciplinary center improves survival rates by 20 to 40 percent. “A lot goes into being an NCI member,” Carey-Goo says. “You have doctors who are certified in pediatric oncology, certified pediatric oncology nurses who go through special classes. We participate in national clinical trials so our patients receive the latest care that’s available anywhere in the U.S. Our patients don’t have to travel to the Mainland for access to the most current trials because these resources are available here.”

Image of hands holding a necklaceMany hands, pulling together
Beyond clinical excellence, Carey-Goo says it takes everyone pulling together outside the hospital, as well as in it, to see children through what is by any measure one of life’s most extreme challenges. Families, volunteers, donors and community support are indispensable links, she says.

Carey-Goo points to Beads of Courage as the most recent example of how families often know best what kids need, noting that the hospital loved the idea and was able to run with it when Larry Taff, and his wife Dr. Kheng See Ang, stepped up to the plate with financial assistance. Others also made donations to ensure that the program could continue. Philanthropy is a critical component of our Children’s Hospital. All the kids here receive the same top-notch cancer care, regardless of their ability to pay. Individual donations help Kapi‘olani maintain our excellence in cancer care for all of our keiki.

The list of other team support runs broad and deep. For example, for the past 17 years, the Greek Ladies Philoptochos Society of Saints Constantine & Helen Greek Orthodox Church have donated airline coupons to help neighbor island families travel to Honolulu for cancer treatment. And families can count on the Hawaii Children’s Cancer Foundation for assistance with daily living expenses. Often, one parent will be out of work to remain with his or her child during treatment. The Foundation’s support helps these families make ends meet.

The American Cancer Society sponsors three camps every year, and Kapi‘olani’s Art for Life program brings art therapy to the children in the hospital and to those visiting for outpatient treatment.

Kids help kids, too. Carey-Goo’s daughter, a junior at St. Andrew’s Priory, trained to become a Beads of Courage Ambassador and now maintains an inventory of several thousand beads.

The beginning of a journey

“It’s the child’s choice to decide whether to start a bead collection,” says Carey-Goo, “and almost all of them do. When a child joins, we have an alphabet box of beads. They spell out their name in beads and put it on their strands. For every hundred beads, they get to choose a special one from the Hundred Beads Club. Individually handcrafted beads, donated by artisans from across the country, mark special hurdles.

Image of JoLyn Valoroso
JoLyn Valoroso
“For example, there’s a special bead for a bone marrow transplant. And when they reach the milestone of completing their course of treatment, they can choose a ‘Purple Heart of Courage’ bead.”

The Beads of Courage program is a success at Kapi‘olani. It is a significant and appropriate way to reflect on each step and milestone in a child’s journey. And because beads are visual, both patients and those who love and care for them have a way to acknowledge their courage. Kids of any age sense this intuitively.

What Do Kids and Parents Say About the Beads?

Hilo 8th grader Jordan Toler was one of the first Beads of Courage members. He recently completed his treatment and says he’ll look back at his beads to see just how many treatments he went through. He recommends other kids participate as a way to always remember their journeys. As for the future, Jordan is looking forward to trying out for football this year!

Five-year-old JoLyn Valoroso (above) started kindergarten this year and proudly shares the newest additions to her bead collection. Her father Joe says that the Beads of Courage represents the “roadmap to JoLyn’s recovery.” He says her necklace is nearly full — coinciding with the last couple months of her treatment in a three-year journey of pokes, checkups, blood-draws and hospitalizations.



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© 2006 StayWell Custom Communications